Doctors Don't Know Everything

>> Saturday, June 25, 2011

Get ready for a bit of a rant.. although I just had a talk with Lucas tonight about not letting one little thing that is wrong color your whole day. So, maybe I should instead heed my own advice instead. Oh, well... I'll do that next time.

If there is anyone out there reading this, and you know me even just a little, you probably know that I love the beach. L.O.V.E. Love. I love the sunshine, I love the heat, I love the sand, I love the sweat, the waves... All of it. I go every chance I get. I stay as long as I can. At least, I used to.
When Hubby and I got back from Costa Rica at the beginning of April, I started noticing a gradual increase in my joint pain/Lupus issues. Long (boring) story short... I am in the midst now of a "flare" up of average intensity (my Rheum's words, not mine). Back on Prednisone, dealing with all kinds of weird symptoms again. Sucks. The worst part is actually that it all started from the heat and sun I got in CR. Then it got significantly worse when I ran the 10K about a month ago. Double sucks.

My Rheum "recommends" that I avoid outdoor running or extended periods in the sun for the next few months at least, until this whole thing calms down. And if I want to keep this thing under wraps once it does calm back down, I probably should avoid prolonged sun/heat exposure in the future. My Rheum obviously does not read this blog or know me very well.

If I am being completely honest, I feel a bit stuck. Would it ever really be possible for me to avoid the sun/beach for the rest of my life? I have two boys who will want to be outside and who I want to grow up loving being on the beach as much as their mama does. And beyond that, I LOVE IT! Why would I do that to myself? It just isn't rational or feasible. Now, I am certainly willing to be a little creative for these years that Lupus is at it's peak. But it is admittedly hard to convince myself that I will one day be without these nagging discomforts and be able to once again bake myself in the sun without consequence.

I know, quit my whining. In a sec...

My doctor may know a lot. But she doesn't know everything. She may be convinced that my life would be better if I did not spend too much time out it the sun. But I am not so convinced. SO much of my life's joy comes from moments in the sun: on the beach, at the park with my boys, exploring something, splashing somewhere. Living.
But yet, this constant achiness/stiffness/fatigue/I-wish-I-could-stick-an-icepick-in-my-wrist pain is just stupid. Stupid.

I know some sort of compromise is the answer. A little less beach/sun in order to have a little less pain. And probably not as much running this summer as I was hoping. I guess I have to push back that goal of a half-marathon for a bit. If I have to.... I just hope the next time I DO get on the beach, I don't look like a beached whale from the lack of running and the months of steroid therapy. OK... rant done.

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Kiki June 25, 2011 at 11:16 PM  

Girlie, we really need to talk! Really.

Love you!
Lisa Marie

Shannon June 26, 2011 at 7:42 AM  

As a fellow beach-lover, my heart is aching for you. I feel like I NEED to be at the beach sometimes. So, I say we should go to Indiana Dunes or New Buffalo (Michigan, but only an hour from my house) and you can sit in my new sun tent. The boys will play together, so you won't have to play with them. And I'll go in the water with them if you don't want to.

Baby Love Slings


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